Changing the lives of those we serve.

Events

SBWIS Events

Shopping with Journey of Hope
Jul
22
6:30 PM18:30

Shopping with Journey of Hope

Join us for a night of shopping at Mayfair Mall on Monday, July 22nd from 6:30pm to 8:30pm. 

This event is appropriate for youth and young adults with disabilities (ages 10 years old and up). You will be joined by a small group of Pi Kappa Phi Journey of Hope North Team cyclists to enjoy socializing, shopping and making new friends. Meet our group in the food court at 6:30pm; pick-up at the end of the event will also be in the food court. 

SBWIS members will receive a $25.00 cash stipend to spend how you choose as you explore the mall, shop or have a meal with your group. Other participants with disabilities should bring their own money. 

Everyone must pre-register to attend by completing the online form below.

Deadline for registration is NOON on Tuesday, July 16th. You will receive a confirmation email on July 17th with reminders and event details. SBWIS wishes to thank the Johnson Family for co-sponsoring this fun event! EVENT REGISTRATION DEADLINE HAS PASSED. HOPEFULLY YOU CAN JOIN US AT ANOTHER EVENT IN THE FUTURE.

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Sprint for Spina Bifida 2019
Aug
10
7:00 AM07:00

Sprint for Spina Bifida 2019

Registration website for this event will be live on April 1, 2019.

https://runsignup.com/Race/WI/Greenfield/SprintforSpinaBifida

Join us on August 10th for the 26th Annual Sprint for Spina Bifida family friendly event! Race day includes light refreshments, resources and vendor displays, games, Kid's Dash, awards and more. This event benefits Wisconsin families affected by the disabling birth defect, Spina Bifida. Funds raised provide financial assistance to families, camp scholarships and community social events. Thank you for supporting SBWIS.  
To ensure everyone's comfort and safety, no bikes, roller blades or pets will be allowed. The Sprint for Spina Bifida will occur rain or shine. We reserve the right to cancel for severe weather threats. Should this occur, no refunds will be provided and your entry fee will be used as a donation to SBWIS. Thank you for your understanding.
 

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SBWIS Office Closed
Dec
23
to Jan 3

SBWIS Office Closed

The SBWIS office will be closed for the holidays reopening on Jan. 3rd. All requests for 2019 financial assistance must be received by midnight on Wednesday, December 18th, 2019 for our consideration and processing before we close. Enjoy your holiday season and happy new year!

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Deadline for Scholarships for Higher Education Funding
May
1
12:00 AM00:00

Deadline for Scholarships for Higher Education Funding

Today is the deadline to request a Scholarship for Higher Education.

Our Scholarship for Higher Education Fund is in memory of Mary Ann Potts and was established in 1996. The scholarship offers assistance for such necessities as tuition, books, fees, room and board, transportation and specialized equipment needs. Applicants must have Spina Bifida, reside in Wisconsin, and meet the criteria of the application. Each individual may receive funding once per calendar year. Direct payment to the school is required.

To request funding from this scholarship, please download the application HERE . Your request will be considered by the SBWIS Board of Directors, and granted as funds allow.

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Danny's Golf Outing
Jun
6
10:00 AM10:00

Danny's Golf Outing

Danny and his family host this golf outing every year to provide funds and services for individuals in Wisconsin with, or affected by Spina Bifida.  Spina Bifida Wisconsin, Ltd. works closely with the family to carry out their generous wishes.  
All golfers will enjoy lunch, an 18 hole scramble, refreshments on the course, and dinner.
Following golf, everyone is invited to a social hour with an open bar and a chance to participate in spectacular silent and voice auctions and raffles.  Space is limited. Registration is open. Click HERE

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Deadline for Scholarships for Higher Education Funding
May
1
12:00 AM00:00

Deadline for Scholarships for Higher Education Funding

Today is the deadline to request a Scholarship for Higher Education.

Our Scholarship for Higher Education Fund is in memory of Mary Ann Potts and was established in 1996. The scholarship offers assistance for such necessities as tuition, books, fees, room and board, transportation and specialized equipment needs. Applicants must have Spina Bifida, reside in Wisconsin, and meet the criteria of the application. Each individual may receive funding once per calendar year. Direct payment to the school is required.

To request funding from this scholarship, please download the application HERE . Your request will be considered by the SBWIS Board of Directors, and granted as funds allow.

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ABOVE AND BEYOND Fun run / walk / roll
Apr
27
10:00 AM10:00

ABOVE AND BEYOND Fun run / walk / roll

NEW IMPORTANT INFORMATION FOR SATURDAY: The weather forecast for tomorrow isn't great - 85% chance of rain, around 40 degrees.  Rain turning into snow.  To beat the snow, and maybe catch a break in the rain, I've decided to change the event time slightly.

9:00am volunteers arrive

10:00am pre-registered participants arrive - we will have a bag ready for each family that includes your event shirt(s) and participation medal(s). We will be in the back of the pavilion on the covered patio. Bring cash $5.00/6 raffle tickets.

10:00am day-of registrations -- rainy day price break $20.00 cash/check (no participation medal; shirt/size not guaranteed)

10:15am - 10:30am we will hope for a break in the rain to set out and complete the walk around the park. Bring umbrellas, rain ponchos, etc...
Upon returning we will have refreshments (water and a snack) and we will draw winners for the raffle items.

SBWIS staff will be present until 11am. We wish to be driving back to Milwaukee before the snow flies.  If the weather impacts your participation, please stop by between 10am and 10:30am to pick up your bag (shirt and medal). We will not mail these items to you after the event. They must be picked up at the park. Park address: 2930 Chapel Valley Road

Please email Kathy with any questions sbwis@sbwis.org.  Thank you for your understanding and flexibility! We are looking forward to seeing everyone.

Join us for our inaugural run / walk / wheel in the Madison area supporting SBWIS families across Wisconsin! For more information and to register visit: https://runsignup.com/Race/WI/Fitchburg/ABOVEANDBEYOND

 Spina Bifida Wisconsin is the only state-wide nonprofit organization serving families impacted by this condition. We recognize the unique challenges that people with spina bifida have to face - multiple surgeries, mobility issues, shunts, latex sensitivity, limited options for care, school and work accommodations to name just a few. When our families encounter obstacles, they consistently go ABOVE AND BEYOND to over-come their difficult situation. This event celebrates the accomplishments of our members and raises money for our programs and services that extend across Wisconsin. We hope you can join us, meet some of our members that have gone ABOVE AND BEYOND, support our mission, and have a great time.

 McKee Farms Park is a gorgeous park in Fitchburg, WI. Our run/walk/wheel route is the paved park path, approximately 1 mile, around the park. Park also includes plenty of free parking, playground, picnic tables, restrooms and outdoor shelter. Event will happen rain or shine!

 Details to remember:

 - Event starts at 10am on April 27th, 2019

- Infants 3 and under are free but still need to be registered

- Early bird registration is $15.00 and ends on April 1st

- After April 1st, fee increases to $20

- On-line registration closes at midnight on April 14th

- Day of registration fee is $25 from 10am-10:30am and shirt / shirt-size not guaranteed. CASH / CHECK ONLY

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Adaptive Indoor Rock Climbing
Mar
16
10:00 AM10:00

Adaptive Indoor Rock Climbing

Join SBWIS for an adventure! Indoor adaptive rock climbing is a great opportunity in our area for staying active throughout the winter. Perhaps after trying it through our event, you’ll want to join their monthly climbing dates. The volunteers assisting climbers are highly trained, making this a fun and very safe experience. This event is appropriate for ages 4 and older, any level of mobility and is FREE to SBWIS members.

Preregistration is required by noon on Monday, March 11th. This event is limited to 6 people. REGISTRATION DEADLINE HAS PAST.

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Madison Adults Italian Dessert and Coffee Evening Social
Feb
8
8:30 PM20:30

Madison Adults Italian Dessert and Coffee Evening Social

SORRY, YOU MISSED THE DEADLINE TO RSVP FOR THIS EVENT.

Join other adults with spina bifida for delicious Italian dessert and coffee - chance to meet and chat. This event is intended for an adult SBWIS member and one guest to attend. SBWIS staff plan to attend and will pay up to $20 / member and guest. Please RSVP by Feb. 5th by completing the form below.

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Madison Friday Night Family Fun
Feb
8
5:00 PM17:00

Madison Friday Night Family Fun

THIS EVENT HAS BEEN CANCELLED DUE TO LACK OF ENROLLMENT.

Join us, and other Madison community members, at this Friday Night Fun event. Let’s meet on Friday, Feb 8th and enjoy the planned activities for all ages. Registration must be completed on My City of Madison (requires account and password). Cost is just $5.00 / family.

https://www.my.cityofmadison.com

In addition to completing their online registration, please complete the form below by Feb 4th so SBWIS knows who is attending. We can meet there, join activities and hang-out. Kathy, Executive Director, plans to travel and attend, be available to answer questions, and help families meet. If fewer than 4 families register, Kathy will not attend, but will email families so you know who to watch for.

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Burger Bash
Jan
26
4:30 PM16:30

Burger Bash

Join other SBWIS families at the 4th annual BURGER BASH at Fuddruckers in Brookfield from 4:30pm to 7:30pm. SBWIS staff will also be available to share resources and answer questions. For this event, SBWIS will pay for the meal for the family member with SB (charged at the restaurant). Other family members attending must pay for their own meals. Pre-registration is required for attending this event.

Deadline for registration was January 21, 2019.

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