Changing the lives of those we serve.


Changing the lives of those we serve.

Resources. Peer Support. Social Events. Awareness. Changing lives!

Spina Bifida Wisconsin, Ltd (SBWIS) is a charitable organization with 501(c)(3) tax-exempt status. SBWIS operates independently from other national or state Spina Bifida organizations. SBWIS includes infants, children and adults with Spina Bifida, as well as parents, guardians, family, friends, healthcare providers, and other supporters. Since 1987, SBWIS has been dedicated to helping families emotionally, educationally, and financially.

We are 458 members strong!


may News:

Welcome new members: Caleb from Elkhorn, Robert from New Franken, Theodore from Wauwatosa, Abby from Viroqua, Gabriella from Oconomowoc, Madelyn from Madison, James C from Middleton, Norah and Jailah.

Danny’s Golf Outing is June 6th at Ironwood Golf Course in Sussex, WI. Click HERE for more information!

GripItRipItSipIt Golf Outing is June 21st at Fairways of Woodside in Sussex, WI. Click HERE for more information!

Mark your calendars! Sprint for Spina Bifida is August 10th at Greenfield Park! Click HERE for more information!

member of the month:

The May Member of the Month is Arik J. from Dunn County! Arik, age 7, is the youngest of 4 children and keeps himself very busy playing in his backyard, playing with Legos, or having Nerf gun fights. He is in first grade at Central Elementary School and his favorite colors are yellow and orange. When Arik was younger, his speech skills were delayed and he was diagnosed “non-verbal”. Using puppets and talking for the puppets helped Arik find his voice and his puppet friend, Paul, keeps him company when visiting clinic. SBWIS Executive Director Kathy writes “I truly enjoyed playing with Arik while he waited for his appointment at clinic and he is talking up a storm! Arik took these selfies, we drew pictures, we played that he was an imaginary puppy and needed x-rays, he drove his race cars -- whew! Way to go Arik, stay healthy, and have fun at school!”


Arik is our May Member of the Month! Arik is pictured here with SBWIS Executive Director Kathy at SB clinic.

Arik is our May Member of the Month! Arik is pictured here with SBWIS Executive Director Kathy at SB clinic.

SBWIS WISHES TO Thank these donors:

Stackner Family Foundation for $5,000.00 for Camperships!

Everyone contributing to our 2018 Annual Appeal for Donations!

Ongoing donations from UnitedHealth Group, Aurora Health Care Caregivers,YourCause LLC Trustee for Thrivent Financial, Ameriprise Financial, Inc. and JC Penny employees.

lives changed in 2019:

13 new members joined SBWIS

20 families through Family Fund Assistance

21 people through Adaptive Recreation Fund Assistance

17 people received Campership Funding

30 members attending our social events

2 scholarship recipients/Mary Ann Potts Scholarship Fund

Lives changeD In 2018:

32 new members joined SBWIS, 32 people served through adaptive recreation funding for things like adaptive ski equipment, a bike, wheelchair basketball program and swim lessons.

39 families through family fund assistance for kitchen modifications, medical expenses, and travel related to child's care. 4 people through scholarships for higher education in memory of Mary Ann Potts.

6 people through Toddlers on the Move. 19 people through Campership funding to attend many different kinds of camps