Changing the lives of those we serve.

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Changing the lives of those we serve.

We are exploring new options for funding in 2024 to expand our services and continue meeting the needs of our members. We value fiscal responsibility and transparency. We are motivated by interactions with our community of members and look forward to hearing from you.
— SBWIS Board of Directors

Resources. Peer Support. Social Events. Awareness. Changing lives!

Spina Bifida Wisconsin, Ltd (SBWIS) is a charitable organization with 501(c)(3) tax-exempt status EIN 39-1594831. SBWIS operates independently from other national or state Spina Bifida organizations. SBWIS membership includes infants, children and adults with Spina Bifida. We also welcome parents, guardians, family, friends, healthcare providers, and other supporters to subscribe and join. Since 1995, SBWIS has been dedicated to helping families impacted by Spina Bifida.

Spina Bifida Wisconsin, Ltd is committed to our mission – to enhance the lives of Wisconsin’s families affected by Spina Bifida by providing resources, peer support and social events in our community. We strive to raise other’s awareness about the unique needs of people with Spina Bifida. We are ambassadors, peers and educators changing the lives of those we serve. 

We are Wisconsin’s only 501(c)(3) charitable organization serving the spina bifida community. You can verify our status by clicking HERE select Charitable Organizations and enter our name to search.

We are 523 members strong!

 

Current News:

Thank you to U.S. Venture/Schmidt Family Foundation for a generous grant towards our 2024 Campership Funding requests. Our goal is to fulfill 100% of the requests we receive, and this contribution will help!

Sprint for Spina Bifida will be on August 10, 2024 at Greenfield Park. I think I can - life with spina bifida is full of doubts and obstacles, SBWIS is here to help! Click HERE to register.

Check out our RESEARCH section on our About and Research page. We are contacted by places across the country conducting research on a variety of things related to SB. Participation is voluntary, and at your own discretion.

Our list of social events is growing! Scroll through our EVENTS page and join us!

Click HERE to shop for items on AMAZON that SBWIS has added to our wish list. Your donation is appreciated!


may Birthdays -

SBWIS wishes to congratulate our members celebrating a May birthday. May all of your wishes come true!

Audra continues to LOVE dancing and singing her heart out.

Bernard is finishing up his social work degree online at UW Whitewater.

Danny loves to travel. He is going on a cruise this summer to Europe.

SBWIS WISHES TO Thank these donors:

The Mary Ann Potts Family for a donation for SBWIS to continue administering the scholarship for higher education in memory of Mary Ann.

Bank Five Nine for sponsoring our Menomonee Falls Family Play Date on July 27th.

U.S. Venture/Schmidt Family Foundation for a grant towards our March Fox Valley Social event and for a larger grant towards our Campership Fund!

Enterprise Mobility Foundation for their very generous grant to fund SBWIS operational expenses.

Our supporters hosting FACEBOOK FUNDRAISERS / NETWORK FOR GOOD.

Ongoing generous donations from Benevity Community Giving, U.S. Bank Employee Giving Campaign, YourCause LLC Trustee for Thrivent Financial, Ameriprise Financial, Inc. Advocate Aurora Healthcare and Rockwell Automation.

Lives changed in 2024:

3 New members with Spina Bifida joined

26 Members joined our community social and virtual events and benefitted from peer support

6 Camperships have been granted

11 Footwear Fund recipients

4 Toddlers on the Move

15 Adult Independence Fund recipients

23 Family Fund recipients

23 Adaptive Recreation Fund recipients

0 Mary Ann Potts Scholarship Fund recipient

17 of our members have benefited from the generosity of the Milwaukee Brewer’s Community Foundation program, along with their families and friends. SBWIS has distributed a total of 96 tickets in 2024

In 2023 SBWIS distributed $33,479.00 in financial assistance directly to our members! We are changing the lives of those we serve.