Changing the lives of those we serve.


Changing the lives of those we serve.

Resources. Peer Support. Social Events. Awareness. Changing lives!

Spina Bifida Wisconsin, Ltd (SBWIS) is a charitable organization with 501(c)(3) tax-exempt status. SBWIS operates independently from other national or state Spina Bifida organizations. SBWIS includes infants, children and adults with Spina Bifida, as well as parents, guardians, family, friends, healthcare providers, and other supporters. Since 1987, SBWIS has been dedicated to helping families emotionally, educationally, and financially.

We are 462 members strong!


august News:

Welcome new members: Thomas, Ian, Brooke, Casey and Jax!

Thank you for raising $14,000.00 at our 26th annual Sprint for Spina Bifida! 27 people with spina bifida attended this year!

Stay tuned for more details about the October Mid-state Bowling & Family Connection in Madison and the October Glow Walk in Neenah.

member of the month:

The August Member of the Month is Jordyn L. from Milwaukee County. Jordyn is 15 1/2 years old and loves to bake and cook with her mom and build things with her dad. Jordyn enjoys visiting the Public Museum, Art Museum, Discovery World, traveling around the state of Wisconsin, and visiting little towns, shopping, and eating at diner's. Jordyn also loves art, crafts, knitting/crocheting, and watching movies-especially older musicals. One activity that Jordyn enjoys with her mom is going to the ballet, the symphony, and to the Fireside Theater.

When asked what advice she would give to others with spina bifida, Jordyn said, “Enjoy your life and don't let your disability slow you down.” An accomplishment that Jordyn is proud of is that she has had over 30+ surgeries and she certainly does not let that slow her down.

In 2018, Jordyn went to camp for the first time and it was the first time she was ever away from her parents. It was a little bit scary, but Jordyn says, “ I had such a great time!! Canoeing and zip lining were probably tied for my favorite thing to do at camp. I met some new friends, and I can't wait to go back again this summer!”

Pictured here is Jordyn our featured August Member of the Month!

Pictured here is Jordyn our featured August Member of the Month!

SBWIS WISHES TO Thank these donors:

Everyone contributing to our 2019 Sprint for Spina Bifida!

Stackner Family Foundation for $5,000.00 for Camperships!

Ongoing donations from UnitedHealth Group, Aurora Health Care Caregivers,YourCause LLC Trustee for Thrivent Financial, Ameriprise Financial, Inc. and JC Penny employees.

lives changed in 2019:

19 new members joined SBWIS

5 Toddlers on the Move

30 families through Family Fund Assistance

25 people through Adaptive Recreation Fund Assistance

16 people received Campership Funding

70 members attending our social events

68 families have received Brewer’s Tickets

2 scholarship recipients/Mary Ann Potts Scholarship Fund