Changing the lives of those we serve.


Changing the lives of those we serve.

Resources. Peer Support. Social Events. Awareness. Changing lives!

Spina Bifida Wisconsin, Ltd (SBWIS) is a charitable organization with 501(c)(3) tax-exempt status. SBWIS operates independently from other national or state Spina Bifida organizations. SBWIS includes infants, children and adults with Spina Bifida, as well as parents, guardians, family, friends, healthcare providers, and other supporters. Since 1987, SBWIS has been dedicated to helping families emotionally, educationally, and financially.

We are 459 members strong!


june News:

Welcome new members: Casey and Jax!

GripItRipItSipIt Golf Outing is June 21st at Fairways of Woodside in Sussex, WI. Click HERE for more information!

Strike Up Some FUN is July 21st with the Journey of Hope North team riders. Click HERE for more information!

Sprint for Spina Bifida is August 10th at Greenfield Park! Early bird registration ends on July 22nd. Click HERE for more information!

member of the month:

The June Member of the Month is Meetra N. from Madison! Meetra is 29 years old and has Myelomeningocele L5 S1 & Hydrocephalus. She works as an Administrative Assistant for Community Living Connections, which provides supports for individuals with disabilities living in their homes.

Meetra loves animals, photography, raising awareness for disabilities and promoting adaptive fitness. Her goal is to become a public speaker and share her story with others around the world. Meetra’s fiancé also has Spina Bifida and is from Brazil. They met on Instagram 3 years ago and he came here in August for school. Meetra grew up in Cottage Grove with a very supportive family. Without them, Meetra says that she wouldn't be the person she is today.

When asked what advice Meetra has for others with spina bifida, Meetra writes, “Never take defeat as an option. There is always a way to do things even if it means adapting! Your disability makes you unique and that should never be taken for granted. Love yourself and all of your faults. Because it is who you are…you are NOT defined by your disability. It is a part of who you are, but it is NOT you.”


Featured here is the June Member of the Month, Meetra!

Featured here is the June Member of the Month, Meetra!

SBWIS WISHES TO Thank these donors:

Stackner Family Foundation for $5,000.00 for Camperships!

Everyone contributing to our 2018 Annual Appeal for Donations!

Ongoing donations from UnitedHealth Group, Aurora Health Care Caregivers,YourCause LLC Trustee for Thrivent Financial, Ameriprise Financial, Inc. and JC Penny employees.

lives changed in 2019:

16 new members joined SBWIS

20 families through Family Fund Assistance

21 people through Adaptive Recreation Fund Assistance

17 people received Campership Funding

30 members attending our social events

42 families have received Brewer’s Tickets

2 scholarship recipients/Mary Ann Potts Scholarship Fund

Lives changeD In 2018:

32 new members joined SBWIS, 32 people served through adaptive recreation funding for things like adaptive ski equipment, a bike, wheelchair basketball program and swim lessons.

39 families through family fund assistance for kitchen modifications, medical expenses, and travel related to child's care. 4 people through scholarships for higher education in memory of Mary Ann Potts.

6 people through Toddlers on the Move. 19 people through Campership funding to attend many different kinds of camps