Changing the lives of those we serve.


Changing the lives of those we serve.

Resources. Peer Support. Social Events. Awareness. Changing lives!

Spina Bifida Wisconsin, Ltd (SBWIS) is a charitable organization with 501(c)(3) tax-exempt status. SBWIS operates independently from other national or state Spina Bifida organizations. SBWIS includes infants, children and adults with Spina Bifida, as well as parents, guardians, family, friends, healthcare providers, and other supporters. Since 1987, SBWIS has been dedicated to helping families emotionally, educationally, and financially.


October News:


Welcome new members: Mary Jo, Jenifer, Gabriella, Patrick, Seth, Trinity, Sebastian and Traeson

Terrific programs are happening across Wisconsin - check out our events page


october is spina bifida awareness month!

Celebrate with SBWIS by sharing our Facebook & Twitter posts of how we are spreading awareness and impacting the lives of those we serve. Or use these hashtags in your own Facebook & Twitter posts #WISBaware and #WISBimpact throughout Oct, Nov and Dec. to build the SB community in Wisconsin. Watch for weekly emails on Tuesdays for stories of awareness and impact. Click HERE for the SBWIS Facebook page. Click HERE for the SBWIS Twitter page. 

SBWIS hopes to educate others about the unique needs of people with spina bifida, the challenges our families face, and the impact SBWIS can have to change the lives of those we serve. There are approximately 1,500 people (out of nearly 6 million) in Wisconsin affected by SB – that is 0.025% of the population; each is like a needle in a haystack! It is our job to find these people, and to provide support and services throughout their lives!

Search these hashtags to see how SBWIS spreads spina bifida awareness and impacts our members!

Search these hashtags to see how SBWIS spreads spina bifida awareness and impacts our members!

SBWIS WISHES TO Thank these donors:

Kohl's Department Stores, Inc. Community Relations $500.00

14th Annual Ella's Outing raised over $2,800.00 to benefit SBWIS

Ongoing donations from United Health Care Group, Aurora Health Care Employee Campaign and JC Penny employees.

Mary Ann Potts family donation for SBWIS scholarship fund

Family and friends remembering Verlon M.

save the date:

October 14th Fall Harvest Fest at Zachariah's Acres in Oconomowoc

October 19th Madison Panera Bread Booster Night

October 28th Adaptive Rock Climbing Adventure Rock in Brookfield

November 10th Rocky's Pizza Night and Social in Madison

November 14th Appleton Uno Pizzeria Fundrasier

November 28 Giving Tuesday $50 from 50 people = 25 lives changed campaign

Lives changeD In 2017:

59 new members this year 

22 families through adaptive recreation funding for things like adaptive ski equipment, a bike, wheelchair basketball program and swim lessons

18 families through family fund assistance for kitchen modifications, medical expenses, and travel related to child's care

3 people through scholarships for higher education

5 people through Toddlers on the Move

14 people through campership funding to attend many different kinds of camps