Support is closer than you think:
SBWIS families need support from others going through similar life experiences. Please connect with the group in your area to learn more about what they offer. These groups are not part of Spina Bifida Wisconsin. They are independent of our organization and are run by area parents willing to help you.
Spina Bifida Family network:
This parent supported network connects Madison area families with each other through Facebook interactions. Search for them on Facebook and send a request to join.
Spina Bifida Superheroes of Wisconsin:
This is a support group for parents of kiddos who have Spina Bifida or those who have Spina Bifida themselves and live in Wisconsin. Most members reside in the western counties / Marshfield clinic area. Search for them on Facebook and send a request to join.
Fox Valley Spina Bifida Support Group:
This non-profit organization hosts 4 support group meetings per year in Appleton, WI and occassional social events for members. Search for them on Facebook and check out their events.
RESOURCES ARE AVAILABLE AROUND WISCONSIN:
Milwaukee Area Adult Peer Support:
The Froedtert & Medical College of Wisconsin Spinal Cord Injury Peer Mentor Program meets every Tuesday from 6 to 7:30pm at Froedtert Hospital and their Facebook page is open to people with spinal cord injury or those who are associated with the spinal cord injury community. The Facebook page gives us an opportunity to share education related to spinal cord injury, communicate special events and share experiences, challenges and successes in your lives. Sharing information and life skills can promote health, wellness and adjustment for those affected by spinal cord injury.
Friend requests will be considered regardless of level of injury, demographic or facility of rehab. We may not accept your friend request if your profile does not indicate an affiliation with a spinal cord injury, persons living with spinal cord injury, support systems for spinal cord injury, caregivers or healthcare providers.
Contact Michelle Wesline for more information: 414-805-2785 or firstname.lastname@example.org
Madison Area Support Group for ADULTS
This group meets on the 2nd Monday of the month for peer support, they also meet socially in the community. FREE adaptive bikes and kayaks are available to members to borrow. For more information visit their website by clicking HERE
Find your county's ADRC office:
Wisconsin Counties have Aging and Disability Resource Centers that are the first place to go to get accurate, unbiased information on all aspects of life related to aging or living with a disability. ADRCs are friendly, welcoming places where anyone - individuals, concerned families or friends, or professionals working with issues related to aging or disabilities - can go for information tailored to their situation. Click HERE to be re-directed to the site that serves your county.